Home Forums General Discussion Info. on Congenital Dysphagocytosis (Granulomatous – CGD)?

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  • #461733
    Dawn
    Participant

    Just checking if any member may have some experience they are willing to share on this. Our family has a very dear family friend just diagnosed with this; and although it typically is noted early in childhood – his was apparently not until after a severe automobile accident and the long recovery stressed his immune system thereby causing this background genetic disorder to come to light.
    Any experiences, guidance, or input would be most welcome. Comments on what he might employ for immune-support, healthful and/or non-allergenic food consumptions, supplements that assist in combating bacterial infections (since his white blood cells are deficient for this task) could greatly assist too!
    Warmly,
    Dawn

    DawnF

    #461738
    richie
    Participant

    It is not very likely anyone here has any experience with CGD since the focus here is rheumatic diseases and lyme somewhat –you might suggest to your friend CGDconnections.com –it looked informative

    #461739
    Dawn
    Participant

    Richie, that is helpful when one is starting from “zero”….I’ll pass that along and thank you very much for responding!

    Best,
    Dawn

    DawnF

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