Home Forums General Discussion In horrible pain what to do?????

This topic contains 10 replies, has 3 voices, and was last updated by  jaminhealth 6 years, 2 months ago.

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  • #306901
    cookie
    Participant

    I was diagnosed with RA since 2005. Over the years I have taken minocycline 3 times a week on Monday Wednesday and Fridays. My skin has discoloured and my toe nails stopped growing. After much thought I decided to stop taking the mino in May of this year 2012. Now I am experiencing severe pain in my shoulders that is gravitating down my arms. I take Naproxen which is prescription Aleve for the severe pain. Is there another antibiotic that I could try with less side effects but with similar properties of mino? I take vitamins and an anti inflammatory drink. Any advice would be greatly appreciated. I have appointment to see my RA doctor but not until late September. My GP would prescribe a new drug to help ease me back from these withdrawal symptoms that I am experiencing. Thanks so much for your help.

    Cookie

    Diagnosed with RA in 2004. Taking minocycline M W F 100mg 2xday. Taking B vitamins, fish oil, probiotics, vit E, calcium, vit D, DHEA, zinc, kaprex, magnesium taurine, curcumin, msm, GLA, vitamin C. Using topical ointments for pain such as Liv Relief, Croyderm and Voltaren. Eating gluten free bread, lactose free milk, lean meat such as chicken and fruits and veggies. Exercising 5 times a week. My side effects of mino are hyperpigmentation of my face/neck and darkening of my gums and whites of eyes.

    #364351
    richie
    Participant

    Hi–relapse is very often a problem when stopping the minocycline –you might discuss with your doctor doxycline –same family b ut seems to have less problems with skin coloring –good luck –
    richie

    #364352
    cookie
    Participant

    Thank you will ask my doctor to prescribe some doxycyline.

    Cookie

    Diagnosed with RA in 2004. Taking minocycline M W F 100mg 2xday. Taking B vitamins, fish oil, probiotics, vit E, calcium, vit D, DHEA, zinc, kaprex, magnesium taurine, curcumin, msm, GLA, vitamin C. Using topical ointments for pain such as Liv Relief, Croyderm and Voltaren. Eating gluten free bread, lactose free milk, lean meat such as chicken and fruits and veggies. Exercising 5 times a week. My side effects of mino are hyperpigmentation of my face/neck and darkening of my gums and whites of eyes.

    #364350
    jaminhealth
    Participant

    I was very fortunate to find a rheumy who believes in and uses Mesotherapy injections. There is a ton of info on Meso on the net. Here is just a little on RA and Meso.

    {{{The types of compounds injected into the mesoderm during Mesotherapy depend upon the disease process that is being treated. Pharmaceutical grade natural plant extracts, as well as traditional pharmacological agents, are used for the treatments. Mesotherapy is effective for a multitude of conditions because it helps **reverse** the physiology of that condition. In ***rheumatoid arthritis****, for example, several agents are used to control inflammation and stimulate healing. A common aesthetic problem, cellulite or more correctly lipodystrophy is a condition involving the circulation as well as the lymph flow within adipose or fat tissue. Lipodystrophy is caused by poor nutrition, hormonal changes in estrogen, progesterone with subsequent elongation of fat cells within dermal columns creating the

    #364353
    richie
    Participant

    Hi—Mesotherapy is being seriously questioned as to its efficacy –the primary use is for cosmetic purposes and most dermotologists will not use it as its effectiveness is seriously questioned —-obviously since that doctor you quoted administers this -the opinion is highly biased –suggest you dig further into it like I just did —
    richie

    #364354
    cookie
    Participant

    Thank you for your information on mesotherapy.

    Cookie

    Diagnosed with RA in 2004. Taking minocycline M W F 100mg 2xday. Taking B vitamins, fish oil, probiotics, vit E, calcium, vit D, DHEA, zinc, kaprex, magnesium taurine, curcumin, msm, GLA, vitamin C. Using topical ointments for pain such as Liv Relief, Croyderm and Voltaren. Eating gluten free bread, lactose free milk, lean meat such as chicken and fruits and veggies. Exercising 5 times a week. My side effects of mino are hyperpigmentation of my face/neck and darkening of my gums and whites of eyes.

    #364355
    cookie
    Participant

    Thank you for the information on mesotherapy. After reading about all the negative information on this treatment I think I will just continue with antibiotic treatment. I will ask my doctor for doxycyline to replace the minocycline and go from there. It’s a tough disease to conquer but hopefully a cure will be found one day.

    Cookie

    Diagnosed with RA in 2004. Taking minocycline M W F 100mg 2xday. Taking B vitamins, fish oil, probiotics, vit E, calcium, vit D, DHEA, zinc, kaprex, magnesium taurine, curcumin, msm, GLA, vitamin C. Using topical ointments for pain such as Liv Relief, Croyderm and Voltaren. Eating gluten free bread, lactose free milk, lean meat such as chicken and fruits and veggies. Exercising 5 times a week. My side effects of mino are hyperpigmentation of my face/neck and darkening of my gums and whites of eyes.

    #364359
    jaminhealth
    Participant

    I’ve read too much positives on Meso and it’s helping me into my 2nd yr and I’ll continue.

    There are positives and negatives on EVERYTHING…..

    Richie, I have been digging into Meso and left it after some early treatments for other stuff that didn’t pan out….so I’m back on Meso and trust my rheumy and what she believes in this treatment.

    As for the Chicago MD, just maybe he’s getting good results with it….why not be biased if it works….

    I found a lot of pros and cons and prefer to stay with the cons as it’s giving me some pain relief.

    #364356
    richie
    Participant

    Or maybe the Chicago doctor is making tons of money on it !!!!!!!!!!!!!!!!
    richie

    #364357
    jaminhealth
    Participant

    I don’t know too many docs who haven’t made tons of money!!!!!!!!!!!!

    If they are helping people, they deserve what they make. We don’t know that and I leave it open to the best positive
    thoughts….

    #364358
    richie
    Participant

    Hi–I know many docs who havent made tons of money and dont self promote –guess its a matter of finding the docs who genuinely want to help people and forgo making tons of money —In fact a few doctors mentioned frequently on this site fit my description —
    richie

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