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This topic contains 19 replies, has 8 voices, and was last updated by  Anonymous 4 years, 9 months ago.

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  • #307260
    Eva Holloway
    Participant

    I woke up during the night with severe pain in my mouth and I thought I had a hole in one of my teeth,so I made an appointment with my dentist. He took several x-rays but he could not find any holes. He then was asking me why I was wearing my gloves and I told him that I have dermatomyositis plus sjorgrensand I showed him my hands. He stated that my gums looked like my hands and he send me to a specialist. So tomorrow I will make an appointment. In the meantime he upped my clindy to be taken 4 times a day to get the inflammation down.
    Anyone have a dental/gum problem like this?
    Eva 😥

    Eva Holloway

    #366816
    Lynne G.SD
    Participant

    Hi Eva;
    I went through hell and back with this.At first I thought I had a cavity as pain was just in one spot.I was busy for a couple weeks and had not made a dentist appointment yet.Next thing I knew I had pain on the other side but the original tooth did not hurt anymore so I decided that I could not have pain in so many teeth and things were looking fishy.Next thing I knew is that the pain would migrate from one side to the other or that every tooth hurt.By then my left eye ball was hurting also.Verdict…trigeminal neuropathy.This see sawed for a few years and I thought I would bash my head into a plate glass window.I started taking Alpha lipoic acid and it went away within 6 months.
    Hope this helps,Lynne

    #366818
    Eva Holloway
    Participant

    Lynn I am taking ALA for some time now so I am somewhat buffeled by this problem. Today was the first day were I only have taken one tylenol. I am on 150 mg clindy 4 x a day for at least the rest of the week. Tomorrow I will make an appointment with a dental specialist to at least look at the spot.
    Eva

    Eva Holloway

    #366817
    lynnie_sydney
    Keymaster

    Eva, I have had a couple of occasions where I got pain (on pressure and hot/cold sensitivity) in a tooth. x-rays showed no abscess or hole. It has always gone away and my AP doc has said the bugs do have a tendency to jump around and into various weaker spots in the body. Not sure if this helps you any with your situation but thought it worth mentioning.

    Be well! Lynnie

    Palindromic RA 30 yrs (Chronic Lyme?)
    Mino 2003-2007 100mg MWF - can no longer tolerate mino/doxy
    abx: MWF a.m. Augmentin Duo (1/2 x 875mg) + 250mg Klacid p.m. Cefaclor (1/4 x 375mg) + 250mg Zithromax. Annual Clindy IV's
    Diet: no gluten, dairy, sulphites, low salicylates
    Supps: 600mg N-AC BID, 1000mg Vit C, CoQ10, P5P 40mg, zinc picolinate 60mg, B3 1000mcg, EPO 1000mg, Lithium orotate 20mg, Magnesium Oil equiv 400mg
    Topical bio-identical estradiol + DHEA caps + Progesterone caps

    #366820
    Eva Holloway
    Participant

    Thanks Lynnie, any and all info helps at this point. The pain has somewhat gone away because I doubled the clindy as he told me and I am on less Tylenol no so far for today. I am trying to stay away from it.
    I thought with my ANA down and some of the other test looking good I would be better, but it doesn’t always go that way, does it?
    Eva

    Eva Holloway

    #366821
    A Friend
    Participant

    @eva Holloway wrote:

    I woke up during the night with severe pain in my mouth and I thought I had a hole in one of my teeth,so I made an appointment with my dentist. He took several x-rays but he could not find any holes. He then was asking me why I was wearing my gloves and I told him that I have dermatomyositis plus sjorgrensand I showed him my hands. He stated that my gums looked like my hands and he send me to a specialist. So tomorrow I will make an appointment. In the meantime he upped my clindy to be taken 4 times a day to get the inflammation down.
    Anyone have a dental/gum problem like this?
    Eva 😥

    Eva, so sorry about this new “trial” you are going through. Have read much on the subject of gum and teeth problems. Found some info and links saved in my Word files that I’m sending to you in a PM. Hope something among it will be helpful. The link/info in particular I was thinking about wasn’t found immediately, but will try to locate it. Will share it when found.
    AF

    PS Have sent the PM with a number of links/info. Also, am pasting this additional info below. The site and any proceeds from it are non-profit and to be used for additional research (just read this there) when I “hit” a link on your subject:

    http://www.vitamincfoundation.org/forum/viewtopic.php?f=19&t=9218
    There are two or three posts that may be helpful on this board above

    #366819
    Eva Holloway
    Participant

    A Friend,
    the odd part is where the pain originates from I have no teeth, I have a bridge there. So that is why the dentist thinks it has something to do with the RA. I will actually print out all the info you send me and read it. Lots of time it is good to print out some info instead of reading through it on the computer. Thank you for this info. I have an appointment with a specialist on Thursday.
    Eva 😯

    Eva Holloway

    #366822
    jims
    Participant

    Hello Eva. I have had lots of teeth problems through the years. I have thought many times it is one of the contributing culprits of my condition. My dad told me once to use ice, as I was in an emergency.I sucked on ice cubes for one whole day. He said if it works its probably an infection of sorts. It did, and it was. Relief came when the doc drilled and let the pus out. Something else I came upon recently was docs are now alternating (when possible) between Acetamenaphin(sp?) and Ibuprofen. Seems they each effect blood differently and this method lessons the possibilities of an adverse event. Tooth pain can be very overwhelming and i feel for you. jims

    #366823
    A Friend
    Participant

    @eva Holloway wrote:

    A Friend,
    the odd part is where the pain originates from I have no teeth, I have a bridge there. So that is why the dentist thinks it has something to do with the RA. I will actually print out all the info you send me and read it. Lots of time it is good to print out some info instead of reading through it on the computer. Thank you for this info. I have an appointment with a specialist on Thursday.
    Eva 😯

    Eva,
    Am wondering if you’ve thought of seeing a holistic dentist? I believe you are in South Texas, and there is an excellent one not far from Austin who I have put on an enormous (justified) pedastal. He is in a small city, and is easy to get to and from. He has people coming from all over. A former member of our RBF posting group would agree with me. If you’d like to have his contact information, his kind staff I know would be glad to answer any preliminary questions for you; and you could also speak with the dentist. Let me know, and I can send this information to you in a PM. It is possible that you have some basic things that have gone awry, like cavitations in bones, etc., where the extractions were done. Am thinking you need to know for sure what is going on, and not have just any dentist (not trained in holistic dentistry) making the decisions without a second opinion.
    Good luck, and God bless!

    Just found a link to the above office, and believe you can watch a video or two on the site. This might be helpful for your “woman’s intuition” to come into play. Will send a PM with the link to you.

    EDIT NOTE: I just watched the whole video again, and believe all of us with chronic illness diagnoses would benefit from watching ALL of it, whether or not we are having dental problems at this time. The dentist whose practice this was — before it became a holistic dental office — tells about his own decline in health, and how he had to seek knowledgeable doctors to turn his own health around, thinking he probably had ALS. After viewing the film again, I believe it gives us a thorough education about dental things we need to be aware of. http://www.healthysmilesforlife.com/video

    AF

    #366824
    Eva Holloway
    Participant

    A Friend,
    thank you for the info on this dentist. A lady I know took her husband there and she did wonders for him. I may need to do this soon. specially since I developed this problem. Someone else gave me two doctors here in Houston, I may check with them first before I go further out from Houston. Tomorrow I have only a consultation with a endodontist. We will see what he is saying. Since I have to pay the whole fee, I might as well go to a holistic doctor. At least the pain is gone the larger amount of clindy is doing its work. By Sunday I should be back to the regular schedule.
    Eva 🙂

    Eva Holloway

    #366825
    cavalier
    Participant

    Everyone is different & thus the reasons for the teeth hurting in various places can be different for me I find when I am herxing often my teeth & gums will hurt in various places, it is not always the same places. Teeth & their roots are meridians to other places in the body they are connected thru the circulatory system if one goes to the net to look up a chinese tooth chart you will see where they are connected to other organs. If you take that chart into account and the body is one living connected system it is not that hard to believe how the mouth can be activated.

    Actually, I see this as a good thing our becoming aware of what is going on deeper inside us but that is how I look at this it may not be the case it’s just my opinion.
    The mouth is the 1st sign of health when a vet looks at a horse it’s mouth is what they guage for health & this includes the color of the gums – same holds for a dog when it is sick is to look at the color of the gums – when I was fighting my pnemonia which i am still recovering from my gums & tongue were paler – circulation was impaired & I have had to work on that it also showed in the color of my fingernails were whiter not pink it all told me it was serious & AP was part of that equation in upping my dosage & bringing back Mino again.

    Vit C along with Lemon juice & AP increases my teeth & gum pain it tells me I have active bugs call them biofilms, nanobacteria or bacteria or all of the above that are still circulating that are being killed off I hope & they are dying but in doing so are leaving in protest or I hope so. Whatever the reason is I know when I am NOT herxing I have none of this feeling of pain but when I am herxing i sure do! So something seems to be stirred up.
    Stepping up for a IV is what i am hoping I can get which sounds like you got some relief with. Hope this is of some help.

    Jill SD, Lyme & CPn

    #366826
    Eva Holloway
    Participant

    thank you so much for all the input, my jaw feels fine right now, but I have decided to see a special dentist in Texas, thanks to: A Friend. I will probably go beginning of March since my grandson will have gone in the Army and my husband and I can stay in Marble Falls for a few days or go to Austin and stay with his cousin. I went to see a Endodontist, but he acted so smart-alecky when I told him that I had Sjorgrens, RA and Dermatomyositis. He said so what does this have to do with your jaw hurting? He must not realize that some of this goes together.
    Eva 😕

    Eva Holloway

    #366827
    lynnie_sydney
    Keymaster

    No Eva, he probably doesn’t. The problem with medical specialisation is that they see the parts they are trained in and very little connection. Sad really. Glad you are feeling better 😀

    Be well! Lynnie

    Palindromic RA 30 yrs (Chronic Lyme?)
    Mino 2003-2007 100mg MWF - can no longer tolerate mino/doxy
    abx: MWF a.m. Augmentin Duo (1/2 x 875mg) + 250mg Klacid p.m. Cefaclor (1/4 x 375mg) + 250mg Zithromax. Annual Clindy IV's
    Diet: no gluten, dairy, sulphites, low salicylates
    Supps: 600mg N-AC BID, 1000mg Vit C, CoQ10, P5P 40mg, zinc picolinate 60mg, B3 1000mcg, EPO 1000mg, Lithium orotate 20mg, Magnesium Oil equiv 400mg
    Topical bio-identical estradiol + DHEA caps + Progesterone caps

    #366829
    Eva Holloway
    Participant

    Hi all,
    so I made my trip to Dr. N. in Marble Falls, TX. I did see the other doctor there and we had a good talk after I had a very thorough check-up. Surprising I have a small infection on the top part of my gum, not on the bottom where it hurt. Anyway one thing she told me is that the sjorgrens did a lot damage to my gums too. I will have surgery on April 8th for about 7 hours. They will do IV conscious sedation plus a Vit C drip. I will go back the next morning to have some more Vit C drip before we drive home ( 4 hours) if I feel better, if not we may just go to Austin and stay overnight at his cousins house.
    Dr.F ( who is doing the surgery) told me why I didn’t feel the small infections is because I am on antibiotics. So I am putting this out as a warning, please have your teeth and gums checked by a good dentists more often to make sure no infection is hiding in your mouth. I have kept my teeth clean and went to the dentist for cleaning etc. but when I had this gum problem starting he didn’t see the infection. The doctor thought this could been there for a longer period of time and therefor it could have been some of my odd health issues over the last 15 months.
    So hopefully with taking care of this I may start feeling better soon. I met one lady several years ago whos husband had seen this dentist and he was very sick with RA and some other related problems and now he is doing very well, so hopefully this will be me getting better .
    Thank you everyone for all the support and ideas what could be wrong. RA and it associated illnesses is always a big issue for all of us, but with everyone helping each other we eventually get better. Thanks also to A Friend
    Eva

    Eva Holloway

    #366828
    Trudi
    Participant

    @eva Holloway wrote:

    So hopefully with taking care of this I may start feeling better soon.

    Eva–
    I hope you will feel better too!! Best wishes for your upcoming surgery.
    Take care,
    Trudi

    Lyme/RA; AP 4/2008 off and on to 3/2010; past use of quinolones may be the cause of my current problems, (including wheelchair use); all supplements (which can aggravate the condition) were discontinued on 10/14/2012. Am now treating for the homozygous MTHFR 1298 mutation. Off of all pain meds since Spring '14 (was on them for years--doctor is amazed--me too). Back on pain med 1/2017. Reinfected? Frozen shoulder?

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