May 23, 2015 at 6:11 pm #308703JustDiagnosedChrisParticipant
I’ve done well on mino as you all know. I do want to talk to Dr. F. About doxycycline though. Since I have such a slow moving Case of SD I was hoping that maybe a simple switch to something my body can handle better would be a good idea. I have read a lot of testimonials of people who used Doxy and it worked well for them. I’m having faith that it will work out. I also am getting a prescription for some potassium citrate from my URO to keep the kidney stones from forming. I saw an Opthamologist who said he thinks my eye problems are occurring between my brain and eye and he thinks its a blood flow issues maybe due to the SDMay 24, 2015 at 10:08 pm #374854richieParticipant
The drug of choice for scleroderma is minocycline –if one cant handle minocycline then doxy is a second choice —
rMay 25, 2015 at 2:57 am #374855Lynne G.SDParticipant
First came tetracycline,over the years it was improved and we got Doxy,a few more improvements and we got Mino.They are working on a fourth generation in the same family but God only knows who will be able to afford it.Each one is a bit better than the previous.May 25, 2015 at 1:58 pm #374856may8Participant
You mentioned eye problems, can you tell me what symptoms you are experiencing ? I have sjogren’s and the opth. Recently fx cataract in L eye. I have very dry eyes and use natural tears.
Minocycline HCL 200 mg daily
Imuran 100 mg daily
Adalat XL 20 mg daily
Prevacid 30 mg
Pilocarpine 5 mg
Probiotic, multi vit, vit c, omega 3, d3, b12May 25, 2015 at 11:48 pm #374857JustDiagnosedChrisParticipant
About 10 years ago, my first abnormal ocular symptoms showed up. I started getting what I can best describe as the residual visuals you get after a camera flashes at you, only it would just happen out of nowhere. Then at age 17 I was diagnosed with an increase in intraocular pressure. I had been wearing glasses since age 11, mind you.
Around age 18( or 19) I began to see clear lines in my vision, like if you can just imagine transparent lines through your vision. Then I started getting night blindness, as well as halos around most every light I look at. At age 20 I noticed that those transparent lines are now constantly in the lower outer corners of both of my eyes, like curved parallel lines. This happened for the first time after taking some blood pressure medication.
I also deal with this constant build up of stringy gooey stuff in my tear ducts, like constantly. And my eyes are always dry feeling. Also, my pupils are very small all the time, much more than they were as a younger person. That’s all of the eye symptoms I’ve had.May 26, 2015 at 6:07 am #374858PhilCParticipant
I’ve done well on mino as you all know. I do want to talk to Dr. F. About doxycycline though. Since I have such a slow moving Case of SD I was hoping that maybe a simple switch to something my body can handle better would be a good idea.
I think it’s a very good idea. Since your body doesn’t handle mino well, a switch to doxy would probably allow you to take a higher dose. There are at least three other tetracycline antibiotics that you could take besides doxycycline, but I think doxy is the best candidate because it can be taken with food.
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