Home Forums Personal History and Progress Threads Back on Track – Carols MCTD Journey

This topic contains 11 replies, has 1 voice, and was last updated by  quilter 3 years, 10 months ago.

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  • #305464
    quilter
    Participant

    Back in 2006 when I was 58, I thought I must have heart trouble because I had extreme fatigue, something I had never had before. My Kaiser doctor ignored my complaint. It seems like all my life I couldn

    Dancing feet are Happy feet!
    Nov 2007 Raynauds, Jan 2008 Carpal tunnel, Aug 2008 Rotator cuff, May 2008 MCTD, July 2013 H.Pylori, Aug 2015 Vaginal Atrophy
    Medications: Minocycline 100 mg MWF, Low Dose Naltrexone 4.5mg, Acidophilus 1-3 a day, Estradiol patch
    Vitamins etc.: Vitamin A, Vitamin E, Vitamin D-3 1000 IU a day, Aspirin 325 mg, Magnesium, B6, B12, Beta-carotene, Cranberry, Garlic, Multi Vitamin, and Glucosamine & Chondroitin with Boswellia & Manganese, & MSN, Grape Seed Complex, Meta

    #356141
    quilter
    Participant

    Update April 2011- I have a doctor

    Dancing feet are Happy feet!
    Nov 2007 Raynauds, Jan 2008 Carpal tunnel, Aug 2008 Rotator cuff, May 2008 MCTD, July 2013 H.Pylori, Aug 2015 Vaginal Atrophy
    Medications: Minocycline 100 mg MWF, Low Dose Naltrexone 4.5mg, Acidophilus 1-3 a day, Estradiol patch
    Vitamins etc.: Vitamin A, Vitamin E, Vitamin D-3 1000 IU a day, Aspirin 325 mg, Magnesium, B6, B12, Beta-carotene, Cranberry, Garlic, Multi Vitamin, and Glucosamine & Chondroitin with Boswellia & Manganese, & MSN, Grape Seed Complex, Meta

    #356142
    quilter
    Participant

    I was studying the web site of The Road Back Foundation and I found an article

    Dancing feet are Happy feet!
    Nov 2007 Raynauds, Jan 2008 Carpal tunnel, Aug 2008 Rotator cuff, May 2008 MCTD, July 2013 H.Pylori, Aug 2015 Vaginal Atrophy
    Medications: Minocycline 100 mg MWF, Low Dose Naltrexone 4.5mg, Acidophilus 1-3 a day, Estradiol patch
    Vitamins etc.: Vitamin A, Vitamin E, Vitamin D-3 1000 IU a day, Aspirin 325 mg, Magnesium, B6, B12, Beta-carotene, Cranberry, Garlic, Multi Vitamin, and Glucosamine & Chondroitin with Boswellia & Manganese, & MSN, Grape Seed Complex, Meta

    #356143
    quilter
    Participant

    I saw my kaiser doctor on Wednesday May 11th. HE SAID THAT THE MINOCYCLINE HAS BEEN EFFECTIVE IN FIGHTING MY AUTOIMMUNE DISEASE! Yeahhhhhh! He is totally supportive of me

    Dancing feet are Happy feet!
    Nov 2007 Raynauds, Jan 2008 Carpal tunnel, Aug 2008 Rotator cuff, May 2008 MCTD, July 2013 H.Pylori, Aug 2015 Vaginal Atrophy
    Medications: Minocycline 100 mg MWF, Low Dose Naltrexone 4.5mg, Acidophilus 1-3 a day, Estradiol patch
    Vitamins etc.: Vitamin A, Vitamin E, Vitamin D-3 1000 IU a day, Aspirin 325 mg, Magnesium, B6, B12, Beta-carotene, Cranberry, Garlic, Multi Vitamin, and Glucosamine & Chondroitin with Boswellia & Manganese, & MSN, Grape Seed Complex, Meta

    #356144
    quilter
    Participant

    I want to chime in about not knowing what you really have! I

    Dancing feet are Happy feet!
    Nov 2007 Raynauds, Jan 2008 Carpal tunnel, Aug 2008 Rotator cuff, May 2008 MCTD, July 2013 H.Pylori, Aug 2015 Vaginal Atrophy
    Medications: Minocycline 100 mg MWF, Low Dose Naltrexone 4.5mg, Acidophilus 1-3 a day, Estradiol patch
    Vitamins etc.: Vitamin A, Vitamin E, Vitamin D-3 1000 IU a day, Aspirin 325 mg, Magnesium, B6, B12, Beta-carotene, Cranberry, Garlic, Multi Vitamin, and Glucosamine & Chondroitin with Boswellia & Manganese, & MSN, Grape Seed Complex, Meta

    #356145
    quilter
    Participant

    LETTER from Dr S of Iowa
    On June 8th, 2011 I sent a detailed letter to Dr S. and I told him about my history and my lab results.
    1) I asked him how long one should continue taking their antibiotic after their symptoms were gone and their lab work was normal.
    2) I asked him about whether people with auto-immune diseases should stop eating dairy, sugar, and gluten. He answered:

    Hello Carol,
    I am glad to see in your email that you have a doctor willing to use minocycline for your MCTD, and happy to see that you have responded well.
    Your labs are negative and I do not think you need any more at this time.
    You have done well on a small dose of minocycline (100mg. MWF), so continue with that dose indefinitely.
    Regarding diet; you could do a trial of avoidance and see if you notice any improvement. It is rare that dairy, gluten and sugar causes a large problem.
    Our goal would be for permanent remission of MCTD, but you will continue the antibiotic indefinitely.
    Let me know if I can help you further, or if you have any other questions.
    Sincerely,
    Dr. S

    LUMP IN MY THROAT
    I don

    Dancing feet are Happy feet!
    Nov 2007 Raynauds, Jan 2008 Carpal tunnel, Aug 2008 Rotator cuff, May 2008 MCTD, July 2013 H.Pylori, Aug 2015 Vaginal Atrophy
    Medications: Minocycline 100 mg MWF, Low Dose Naltrexone 4.5mg, Acidophilus 1-3 a day, Estradiol patch
    Vitamins etc.: Vitamin A, Vitamin E, Vitamin D-3 1000 IU a day, Aspirin 325 mg, Magnesium, B6, B12, Beta-carotene, Cranberry, Garlic, Multi Vitamin, and Glucosamine & Chondroitin with Boswellia & Manganese, & MSN, Grape Seed Complex, Meta

    #356146
    quilter
    Participant

    Update October 2012

    I

    Dancing feet are Happy feet!
    Nov 2007 Raynauds, Jan 2008 Carpal tunnel, Aug 2008 Rotator cuff, May 2008 MCTD, July 2013 H.Pylori, Aug 2015 Vaginal Atrophy
    Medications: Minocycline 100 mg MWF, Low Dose Naltrexone 4.5mg, Acidophilus 1-3 a day, Estradiol patch
    Vitamins etc.: Vitamin A, Vitamin E, Vitamin D-3 1000 IU a day, Aspirin 325 mg, Magnesium, B6, B12, Beta-carotene, Cranberry, Garlic, Multi Vitamin, and Glucosamine & Chondroitin with Boswellia & Manganese, & MSN, Grape Seed Complex, Meta

    #356147
    quilter
    Participant

    Would you prescribe Flonase for me? It is a steroid medication that relieves inflammation. My nose is soooo dry. Maybe it would help my throat too.

    I

    Dancing feet are Happy feet!
    Nov 2007 Raynauds, Jan 2008 Carpal tunnel, Aug 2008 Rotator cuff, May 2008 MCTD, July 2013 H.Pylori, Aug 2015 Vaginal Atrophy
    Medications: Minocycline 100 mg MWF, Low Dose Naltrexone 4.5mg, Acidophilus 1-3 a day, Estradiol patch
    Vitamins etc.: Vitamin A, Vitamin E, Vitamin D-3 1000 IU a day, Aspirin 325 mg, Magnesium, B6, B12, Beta-carotene, Cranberry, Garlic, Multi Vitamin, and Glucosamine & Chondroitin with Boswellia & Manganese, & MSN, Grape Seed Complex, Meta

    #356148
    quilter
    Participant

    Update-Feb 20, 2013

    It was back in Feb of 2012 that I stopped taking my Mino because of the “lumps on the top of my head”. In the 1996 Physicians Desk Reference I read that

    Dancing feet are Happy feet!
    Nov 2007 Raynauds, Jan 2008 Carpal tunnel, Aug 2008 Rotator cuff, May 2008 MCTD, July 2013 H.Pylori, Aug 2015 Vaginal Atrophy
    Medications: Minocycline 100 mg MWF, Low Dose Naltrexone 4.5mg, Acidophilus 1-3 a day, Estradiol patch
    Vitamins etc.: Vitamin A, Vitamin E, Vitamin D-3 1000 IU a day, Aspirin 325 mg, Magnesium, B6, B12, Beta-carotene, Cranberry, Garlic, Multi Vitamin, and Glucosamine & Chondroitin with Boswellia & Manganese, & MSN, Grape Seed Complex, Meta

    #356149
    quilter
    Participant

    Crash again April 20, 2013-I stopped taking my mino for two weeks
    Many things happened between March 18th and April 30th.
    ~First, I thought I injured my back while I was trying to touch my toes. I didn

    Dancing feet are Happy feet!
    Nov 2007 Raynauds, Jan 2008 Carpal tunnel, Aug 2008 Rotator cuff, May 2008 MCTD, July 2013 H.Pylori, Aug 2015 Vaginal Atrophy
    Medications: Minocycline 100 mg MWF, Low Dose Naltrexone 4.5mg, Acidophilus 1-3 a day, Estradiol patch
    Vitamins etc.: Vitamin A, Vitamin E, Vitamin D-3 1000 IU a day, Aspirin 325 mg, Magnesium, B6, B12, Beta-carotene, Cranberry, Garlic, Multi Vitamin, and Glucosamine & Chondroitin with Boswellia & Manganese, & MSN, Grape Seed Complex, Meta

    #356150
    quilter
    Participant

    What a relief, after all this time, 11 months, my throat is finally better. And what a surprise it was. I told you about how my throat felt like it was tightened up ever since I had that food poisoning last June. My doctor told me to do some neck exercises and it seemed like that helped a little. The Carafate that he prescribed didn

    Dancing feet are Happy feet!
    Nov 2007 Raynauds, Jan 2008 Carpal tunnel, Aug 2008 Rotator cuff, May 2008 MCTD, July 2013 H.Pylori, Aug 2015 Vaginal Atrophy
    Medications: Minocycline 100 mg MWF, Low Dose Naltrexone 4.5mg, Acidophilus 1-3 a day, Estradiol patch
    Vitamins etc.: Vitamin A, Vitamin E, Vitamin D-3 1000 IU a day, Aspirin 325 mg, Magnesium, B6, B12, Beta-carotene, Cranberry, Garlic, Multi Vitamin, and Glucosamine & Chondroitin with Boswellia & Manganese, & MSN, Grape Seed Complex, Meta

    #356151
    quilter
    Participant

    My throat problem is totally gone: 😀
    I had Heliobacter Pylori last April; the antibiotics that I took to cure the H Pylori also cured my throat. It

    Dancing feet are Happy feet!
    Nov 2007 Raynauds, Jan 2008 Carpal tunnel, Aug 2008 Rotator cuff, May 2008 MCTD, July 2013 H.Pylori, Aug 2015 Vaginal Atrophy
    Medications: Minocycline 100 mg MWF, Low Dose Naltrexone 4.5mg, Acidophilus 1-3 a day, Estradiol patch
    Vitamins etc.: Vitamin A, Vitamin E, Vitamin D-3 1000 IU a day, Aspirin 325 mg, Magnesium, B6, B12, Beta-carotene, Cranberry, Garlic, Multi Vitamin, and Glucosamine & Chondroitin with Boswellia & Manganese, & MSN, Grape Seed Complex, Meta

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