Home Forums General Discussion AP Doc scerloderma NJ/Philly/NY area

This topic contains 1 reply, has 2 voices, and was last updated by  Maz 7 months ago.

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  • #461522
    cdannunzio
    Participant

    Looking for experienced docs treating patients with scleroderma with AP in the NY, NJ, Philadelphia region. Original list I received was touch and go. Please provide reliable experienced doctors. Thank you!

    #461526
    Maz
    Keymaster

    Hi cdannunzio,

    Not sure what you mean by “touch and go?” Many of the docs who provide AP are alternative (integrative, holistic, functional med) type docs, because AP isn’t a standard of care treatment for SD. There is one rheumy at Hosp for Special Surgery, but I think he’s just seeing RA patients now and close to retirement, but you could check to see if he’d see a SD patient. If, however, you want IV clindamycin in addition to oral minocycline, then you’d like need to go to see the doc in Bedford, PA. NJ has a real dearth of any good AP docs.

    The newly listed dermatologist in NYC may make a good option for SD patients or anyone with rheumatic skin manifestations. He’s been working with a severe dermatomyositis patient and got her into remission within a year. He is also able to work with a compounding pharmacist to re-create the pelleted brand Minocin that is no longer available.

    There are also Lyme Literate MD lists of docs who also use antibiotic therapy, more to select from in all these states, but you’d likely need to have had a history of Lyme or other tickborne infections or suspect infection.

    Can you describe a bit more what you’re looking for in an AP doc and maybe we can put our heads together on this to find a suitable match?

    Severe, swift onset RA as a result of Lyme disease
    Current Meds: Biaxin (500mg BID), Tetracycline (500mg BID), Tirosint (88mcg), Liothyronine (10 mcg), Compounded Liposomal Artemisinin, LDN (3mg), Topical Progesterone,
    Current Supps: Curcumin, Bovine Colostrum, ALA. NAC, Milk Thistle, Super Liquid Folate/B12/B-Complex, Probiotics, Vit D3
    Supportive Measures: IV Myer's Cocktails, IV Glutathione, FIR Sauna, Gluten-free diet, Gym.

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