HELP ready to give up

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HELP ready to give up

Postby 51 year old » Sat Apr 09, 2011 9:39 am

I dont think my prior post went thru? I will try again.
I was told I have RA a year ago and have been on minocycline since July. My mom was diagnosed with RA at 71. I was diagnosed at 50. I did everything right my whole life. I only ate organic foods, exercised 7 days a week, believe in alternative medicine, supplements, and just health living and I get RA. What a bummer. It is not fair!!! Should I have ate fast food, smoked, and drank heavily all my life? My doctor thinks out of the box and she is stumped why I have not improved. At first the pain, swelling, and inflamation was so bad that life was miserable. The pain was a 10 on a scale of 10. Now the pain and swelling has diminshed to bearable but I still reach for the iburpohen several times a day, occasional narcotic, hot tub in the morning or hot shower if I am traveling and I can barely walk at times. The pain in the knees and feet and ankles and truned me into a hobbling specimen. My quality of life sucks. My SED rate and RA factor is back to normal but I fear all the destruction that is still occurring to my joints.
I am just about ready to start the dreaded Methotrexate regime.
Please give me some advise.

Your first post DID go through as has this one. Please look in the General Discussion area. It was moved to General Discussion from here (Personal History and Progress) which is for authors' journal notes only and which cannot generate responses from others. RBFV
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Re: HELP ready to give up

Postby Valsmum » Sat Apr 09, 2011 8:01 pm

I replied to your last post as well as a few others, look for it under topics.
I hope you feel better.
Sheri
RA-2009
Minocycline for one year 2010-2011
Currently no antibiotics
http://www.hulu.com - You can watch "Fat Sick and Nearly Dead" for free, its about a man that overcomes his autoimmune disease with diet. Quote from docu. "If the body can heal itself on the outside then why can't it heal itself on the inside."
http://www.gerson.org - There is a man that recovered from Lyme disease using Gerson Therapy and his story is available to read on gerson.org. Look for the "Healing Stories" tab.

I eat 85% fruits and veggies. If I stay away from dairy,nightshades & grains/starches I'm a happy gal. My ESR went from 55 to 28 in 6 months after I changed my diet.
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Re: HELP ready to give up

Postby Eva Holloway » Sat Apr 09, 2011 8:45 pm

51
sorry to hear you have so much pain. :cry: :cry: Welcome to this site, there are lots of people able to talk to you. What we tell you is from the experience we have from out illness and what has helped us. Taking antibiotics is a slow process and it may take more then the given time to work. I have been on antibiotics for over three years and it took me good two years to have almost no pain, but then I had been taking lots of other stuff from the rheumy which didn't help. Some people are actually talking some immun suppressing medication with the antibiotics because they are feeling so bad. Every one is different, so I can not go by what they are taking because all the other medication actually made me more ill.
Are you taking Minocyline every day or MWF? sometimes taking too much of the antibiotics my give you a herx and you will hurt more. Are you having deformities or are you in a lot of pain when walking (from the RA)? Sometimes a bath with epsom salt helps. I can't sit in the tub so I use a small infrared saune several times a week and that helps.
write in your signature line what your illness is and what medication you are taking, this way it's easier to see what may help or hurt.
Eva :)
Life is: Trying things to see if they work
RA: dx 1999, DM :dx 2006, AS: dx 2007, Celiac:dx2007, LDN add 9-11-09,Alpha Lipoic Acid
Minocin MWF 100 mg 1x, Clindy 150 mg 2x a day, thyroid armour 60 mg, Probiotics + Kefir
Iodine, B-12, Cal-Mag-Boron, NAC, 3 mg LDN, Ester-C 500 mg, Vit D3, E
http://www.rbfbb.org/view_topi
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Re: HELP ready to give up

Postby Jan Lucinda1 » Sat Apr 09, 2011 10:30 pm

Your last post went through. Good luck to you.

Jan
dx RA '08
start AP 8/10
Plaquenil 1/12
restart AP 9/12
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Re: HELP ready to give up

Postby dianne-sunshinecoast » Sun Apr 10, 2011 12:38 am

hi 51., replied to your last post, hope you get relief soon :) sending good thoughts..regards..di
seropositive r.a. 2007,whole blood positive borrelia burg. june 2011( australian biologics), negative lyme disease october 2011( healthscope laboritories).not pcr tested as per aus.bio.-5mg folic acid wkly-meditation and relaxation daily .gluten / dairy free/ mainly .Regular Massage and Spinal Alignment. Currently in remission. 10 mg methotrexate
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Re: HELP ready to give up

Postby judy cash » Sun Apr 10, 2011 7:55 pm

Hi 51,
I am 52 and was diag. with RA two years ago. I was very healthy up until a few years before my diag. none of the doctors knew what was wrong with me. I suffered, my kids and family suffered also.....When I did receive my RA diag. I got started on 100 mg. of minocycline twice a day, and one week of Clindy IV's. At first I got worse, then I slowly began to feel better, until a few months age when I started feeling like my old self again...It has been almost 2 years since I started AP, and it did not help overnight...It does take time....But it did work for me. I have not had any more of the severe pain that I had before starting AP. PLEASE read my post titled "I FEEL LIKE INSPIRING OUR NEWBYS". If I can help you in any way , just let me know.
Judy
Symptoms since 2007
Diagnosed R.A. April 2009
Started A.P. June 2009
Minocycline 100mg. twice daily
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Re: HELP ready to give up

Postby Noraclaypod » Thu Apr 14, 2011 4:33 pm

I was where you are four months ago. I am now completely free of symptoms. Tried Minocin but I couldn't afford anything but the generic and it broke me out. My derm refused to prescribe anymore for me. (I never found a Scleroderma doctor.)
In desperation I tried a weird treatment that I absolutely didn't believe would work, but it did. I stopped eating gluten altogether, switched to bottled purified water with no chlorine or flouride, and started drinking 1/8 teaspon of 20 Muleteam Borax in a litre of water three days on, one day off.
I have tons of energy, no dizzyness, none of the intestinal problems I was having, and all my swollen joints went down. I lost the 40 pounds I'd put on because I counldn't exercise or move. The shortness of breath is gone. I spring out of bed in the morning with no joint pain! I haven't used my cane in two months!
I wish you'd try it, if nothing else is working.
The biggest benefit is you're not adding to your body's toxic load with all those drugs. My hair stopped falling out, and my immune system is functioning again. I used to avoid contact with my grandchildren because I caught every cold they brought home from school. Now if I get a cold it's gone in a day or two. I climb stairs at a trot and can squat and stoop to pick things up--I hadn't been able to do that in years. If you had seen me struggling to get on my feet and lurching while I tried to drag my self around, you would'nt believe I'm the same person. It only took two months for me to see dramatic results. God blessed me.
I believe Systemic Scleroderma and RA are caused by the same bacterium (mycoplasm) or a related bacterium, so it's worth a try, and the best part is it won't hurt you. I had absolutely no side effects, despite a lifetime of allergies to everything from drugs to ant bites. I don't like to hear about people suffering, and I so hope you find that this helps you.
"Never go to a doctor whose office plants have died." Erma Bombeck
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Re: HELP ready to give up

Postby Trudi » Tue Apr 19, 2011 1:39 pm

Thanks, Nora, for this post and the further information you gave me via PM.

For anyone interested, if you google "borax for arthritis," you will find much information on this treatment.

Take care,
Trudi
Lyme/RA; AP 4/2008 off and on to 3/2010; recognizing that the past use of quinolones (herbal and pharmaceutical) may be the cause of my current problems, all supplements (which can aggravate the condition) were discontinued on 10/14/2012. Am now also treating for the homozygous MTHFR 1298 mutation. The use of brewer's yeast to increase folate and the B vitamins has been helpful. 12/2013 started Homocysteine Factors by Pure Encapsulations (no fillers).
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Re: HELP ready to give up

Postby gordbentley » Tue Apr 19, 2011 5:30 pm

ummmm, isn't borax extremely toxic?? not sure if we should be promoting this?

http://www.ehow.com/list_6022301_borax- ... fects.html
feeling normal and healthy at the moment :) (Minocyline 50-100mg MWF, NFH pro-bio90,)
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Re: HELP ready to give up

Postby Noraclaypod » Tue Apr 19, 2011 7:03 pm

If it were, I'd be dead by now, ha ha. I'm glad you raised this concern, and you are very right to do so. You may save someone from drinking the wrong thing: Never mistake 20 Mule Team Borax for Boric Acid, which is extremely toxic.

20 Mule Team Borax is Sodium borate decahydrate, which is what made me well. It is not the same thing at all as Boric Acid, which is highly toxic and should never be ingested.
If you're in the UK, the distinction may be blurred by different packaging and labeling laws.

Borax has been used in pesticides, (but is a natural substance that is mined, not synthesized) for this reason, I was highly skeptical and hesitated myself before trying it. The fact is, you take a very small amount, way too small to do YOU any harm, but it is deadly to the mycoplasms!

I'm not promoting anything, simply telling you what worked. I was near death in December, and now I am not only working again, I am symptom free.

I can't even feel my plaques anymore, they've become as flat as normal skin, and soft. I do have permanently tanned skin where they were, but there is no thickening or pain, and there are no new ones forming. I will continue on this course of treatment for the rest of my life which will hopefully be long! I drink the mixture one day a week now.

I had no choice but to seek an alternative because of my allergic reaction to antibiotics, which work (although slowly) for most people, and the fact that I couldn't get an appointment with a Scleroderma doctor. If you are getting good care from a doctor and the antibiotics are working for you, I am very happy to hear it. If not, follow my example, it isn't going to kill you, (or even make you sick) because I would never endorse something I hadn't tried. I'm also skeptical. It worked, I'm well, and that's all I can tell you.
"Never go to a doctor whose office plants have died." Erma Bombeck
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