Osteopenia & Connective Tissue Diseases

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Osteopenia & Connective Tissue Diseases

Postby kowens » Thu Nov 11, 2010 7:54 pm

I'm in remission from Diffuse Scleroderma. In July, I broke a finger in a random accident. My docs ordered a bone density test and were suprised to see that I have osteopenia -- only one point away from Osteoporosis. I have never taken steroids, I don't smoke, I exercise regularly... I'm so bummed by this news. With my lifestyle and age (41) my docs did not expect this outcome. They believe it is related to the autoimmune disease.

Has anyone else on this forum had bone density problems? Do you think it is related to autoimmune disease? How did you opt to treat the problem?
Thanks, Kim
KOwens
DX: 7/09 +ANA +SCL70=UCTD (+GERD +osteopenia +parathesia +dysphasia +IBS +CFIDS)
Current TX (Mar 2013) = LDN 4.5mgs, Borrellia Antigen, cytozine, ALA 300mgs, Culturelle, 1c Fermented veggies/day, Vit D3 5k iu, Vit B, Vit K, Multi vit and antigen for morphea, anti-inflammatory diet.
Past TX: .
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Re: Osteopenia & Connective Tissue Diseases

Postby Lynne G./SD » Thu Nov 11, 2010 8:52 pm

Hi K;
If you read www.marshallprotocol.com Dr. Marshall goes into this quite extensively.I have osteoporosis and the only nice thing I can say it that it is reversing with a LOT of exercise.
Lynne G
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clindamycin 300mg on Thursday
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Re: Osteopenia & Connective Tissue Diseases

Postby Parisa » Thu Nov 11, 2010 9:20 pm

Kim,

I'm putting together my own protocol to treat my osteopenia. I exercise, have never smoked or taken steroids but it is still an issue for me. I am taking Vitamin D and strontium. The hip pain I was having resolved within three weeks of starting this. Is it related? I don't know for sure as I won't be having another scan for at least a year. I also will probably add in Vit K.
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Re: Osteopenia & Connective Tissue Diseases

Postby Maz » Thu Nov 11, 2010 11:02 pm

kowens wrote:I'm in remission from Diffuse Scleroderma. In July, I broke a finger in a random accident. My docs ordered a bone density test and were suprised to see that I have osteopenia -- only one point away from Osteoporosis. I have never taken steroids, I don't smoke, I exercise regularly... I'm so bummed by this news. With my lifestyle and age (41) my docs did not expect this outcome. They believe it is related to the autoimmune disease.

Has anyone else on this forum had bone density problems? Do you think it is related to autoimmune disease? How did you opt to treat the problem?
Thanks, Kim


Hi Kim,

One person you might like to speak with about this is A Friend, as she has posted quite a bit about acidosis and how an acidic, diseased state in the body can result in the leaching of minerals from our bones to bring the body back into homeostasis. This theory has been blasted by the mainstream for being a bit 'out there' and, bascially, quackery, because the body is always seeking homeostasis and you'd be close to death if in a state of acidosis...well comotose, actually. The point being, however, that it is because the body is constantly seeking this homeostasis when stressed by disease that it begins leaching minerals from the bones in an attempt to alkalize and balance the body. The effort is fruitful, but the bones are the collateral damage.

One of the ways that conventional medicine attempts to correct osteopenia or osteoporosis is to simply replace calcium, but the drugs used for this have been found to have their own set of serious issues, including the production of bone spurs, severe reflux, kidney and gall stones, arterial plaques, etc. Why? Well, likely because in order for calcium to be properly metabolized and assimilated by the body, it needs adequate amounts magnesium and Vit D. The miracle of magnesium is that it also reduces body pH and lessens the need for the body to leach calcium from the bones.

A Friend has some wonderful links on all this and, if the search function was working, you'd be able to look it up. Hopefully, she will see your post, though, and be able to fill you in with more detail and resources to research. Otherwise, you could try PMing her.
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FIR Sauna and other detox methods as described in Personal Progress Thread.
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Re: Osteopenia & Connective Tissue Diseases

Postby Kim » Fri Nov 12, 2010 6:06 am

Hi Kim,

I have full-blown osteoporosis and wish I had it figured out, but I don't. Mine is probably mostly genetic, but surely being sick didn't help. I've worked hard on gut health for better absorption, exercise and eat well. I have flatly refused to take the prescription osteo drugs and had to endure the wrath of my doctors as they were waving my results in my face. :x

Take care.....kim
SD, RA, MCTD, Hashimoto's, Osteoporosis, Sjogren's, Uveitis, Lyme dx 9/08, AP 8/05-3/08, MP 3/08-8/08, AP/Lyme protocol 9/08, 9/09-REMISSION.
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Re: Osteopenia & Connective Tissue Diseases

Postby Randy » Fri Nov 12, 2010 1:01 pm

I recently had my L hip resurfaced and prior to the operation my bone density was checked. Yes, my hip was in the osteopenia range. I was shocked about this, as I have been a competitive athelete all my life. So, why the lose in bone density? Was this due to SD? I believe the answer is yes, but in a roun-about way. I believe that those of us with AI's who are sidelined and unable to keep "pounding" on our joints lose bone density. This makes sense. The same thing happens over time naturally to anyone who essentially doesn't exercise.

The awesome news for me is that now that AP has worked so well I will restart my running and other pounding type exercising. As a result, my bone density will certainly return to normal naturally.

Randy
Diffuse SD since Apr '07
Began AP Feb '08
Minocin 100mg twice daily M, T, Th, Fri
Clindy 1200mg IV's 1wk/6 wks

GO AP! BEAT SD!
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Re: Osteopenia & Connective Tissue Diseases

Postby bonnielou » Fri Nov 12, 2010 1:43 pm

If you need anything to help convince you to stay away from the biphosphonates, read this article from Wednesday's NY Times
http://www.nytimes.com/2010/11/11/healt ... ref=health

I was also diagnosed with osteopenia, a little before my RA diagnosis. I was on Fosomax for one year. The more I read the more frightened I became of the drug. And then I read something in Andrew Weil's book on healthy aging that really spoke to me. He wrote "don't take strong medicine for mild disease".

I stopped. My bone health has not improved, but it has stabilized. I am very petite and that is a common marker for thin bones. But that cure is worse than the disease.

Bonnie
Bonnie Lou RA 02/07,AP 10/07
Minocycline 200mg MWF; Plaquenil 300mg daily
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Re: Osteopenia & Connective Tissue Diseases

Postby lynnie_sydney » Fri Nov 12, 2010 4:45 pm

Bonnie - you can do much for your bones with good Magnesium supplementation (2 or 3:1 to calcium), a little Vit D and boron; making sure your hormones are sufficient (later down the track investigate bio-identical progesterone) plus some weight bearing exercise. Lynnie
Be well! Lynnie

Palindromic RA 20+ yrs (Chronic Lyme, CPn,)
Mino 2003-2007 100mg MWF
Now: diet to heal gut - no gluten, dairy, sulphites - 70-80% alkaline effect food
abx regime from May 2012 : MWF a.m. Cefaclor (1/4 375mg) + Fungilin 5mg (amphotecerin)
p.m. Cyproxin 500mg(1/4) + Cilicaine VK (phenoxymethyl penicillin)
supps: 600mg N-AC BID, CoQ10, B-Complex, B-12 sub-lingual, probiotic, Ascorbic Acid 2 grams,
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Re: Osteopenia & Connective Tissue Diseases

Postby A Friend » Fri Nov 12, 2010 11:52 pm

Hello Kim,

I read your post, and also Maz's reply to you on osteopenia and connective tissue diseases, mentioning my own searching/finding in these areas. (It's a shame we seem to have lost our past messages and cannot use the search feature to find them.) Below is a link that I strongly urge you to read. It is from Mildred Seelig, PhD's work, and for me it has been an eye opener and stopped the increasing pain in my fascia and bones.

Since I have been correcting (since late 2006) an apparent severe magnesium deficiency and acidosis (even though I've had a very rigid healthy diet almost forever), a repeat bone scan in November 2009 showed significant improvement, with magnesium chloride therapy (MagChlor90) and making sure my urine/saliva pH testing stays in a healthy alkaline range. Testing these is sort of a barometer to tell me how my body is doing pH-wise. My PCP tells me to keep on doing what I'm doing.

The importance of magnesium deficiency has not just been researched by her, but by many and I've found many papers on this. Am pasting a link and an excerpt from the book about osteopenia, but urge you to click on the link and to begin reading from the top.

[Note: I'm very disappointed... apparently links cannot be made active here in our posts. Hope you can copy/paste the link below into your browser.]

The following is an example of how if magnesium deficiency is present, calcium and vitamin D can become very problematic.
http://www.mgwater.com/Seelig/Magnesium ... er14.shtml
14.3. Calcemic Therapy for Osteopenias

Hope this topic will be helpful to you.
AF
Best to you all, AF ~Had Dx TMJ; 1991 onset illness+abx &TMJ gone (was infection. Illness recurred every 4 mos for 2 yrs...another abx & would leave (caused systemic fungal overgrowth, to me unseen/unknown). Given Dr. Wm Crook's book abt 1993, ahaa! followed protocols, began recovering/doing well. Relocated to be near elderly parent; mold exposure in apt.1996 while bldg. home; suspected dx'es: RA or LUPUS or MCTD. Found Dr Brown book/1997-AP 6+ yrs, greatly improved. Then, overcame Uveitis 1999; 2003-liver cytokine storm to 2 abx,had to stop AP. Downhill thru 2006; found/corrected acidosis/pain syndromes; resumed AP 2006,improved w/new protocols & attn to pH/acidosis,w MagChlor90, BVits,CoQ10, Budwig Flaxoil EFA combo,VitK-2, Biotin/Boron/ImmunoPro/Niacinamide..doing great. 2011 stopped Minocin; began ImmunoPro/supplies necessary amino acids+addresses organisms + body's metabolic detox. Jan 2013: Severe IBS to Dr suggested VitD3 5000--IBS ceased ONLY after I took Abx for dental extraction. Hi-dose Vit C as powdered ascorbates mixed (per Pauling & Cathcart research). Do Not Stop Vit C suddenly). Still learning/overcoming, and still on the "Road Back."
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Re: Osteopenia & Connective Tissue Diseases

Postby lynnie_sydney » Sat Nov 13, 2010 4:37 am

I read your post, and also Maz's reply to you on osteopenia and connective tissue diseases, mentioning my own searching/finding in these areas. (It's a shame we seem to have lost our past messages and cannot use the search feature to
[Note: I'm very disappointed... apparently links cannot be made active here in our posts. Hope you can copy/paste the link below into your browser.]

AF - may we ask for your patience. There are some issues which need fixing and those you mention are among them. It has been a mammoth task moving over 5000 topics and around 50,000 posts (we didnt want to lose these) and lots of technical issues have arisen because of this. The techs are dealing with these on a rolling basis. We hope to have plenty of usability in this Forum over time. Thanks. Lynnie
Be well! Lynnie

Palindromic RA 20+ yrs (Chronic Lyme, CPn,)
Mino 2003-2007 100mg MWF
Now: diet to heal gut - no gluten, dairy, sulphites - 70-80% alkaline effect food
abx regime from May 2012 : MWF a.m. Cefaclor (1/4 375mg) + Fungilin 5mg (amphotecerin)
p.m. Cyproxin 500mg(1/4) + Cilicaine VK (phenoxymethyl penicillin)
supps: 600mg N-AC BID, CoQ10, B-Complex, B-12 sub-lingual, probiotic, Ascorbic Acid 2 grams,
3mg Melatonin + 5-HTP to promote sleep, Krill Oil + Lithium Orotate (natural mineral)
2007 testimonial: http://www.roadback.org/index.cfm/fusea ... d/490.html
personal progress:
viewtopic.php?f=3&t=371
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